Skip to main content

COPD Support Groups.


When I was first diagnosed I didn't know much about COPD. 

I knew it had to do with not breathing well. It was, in my opinion, a senior aged smoker thing. How could someone my age, some HEALTHY and ACTIVE, who only smoked a half a pack a day or less, HOW could I get this??? I was in my 30's! Thinking back, I had it in my twenties, and just didn't think anything of it. It was an occasional breathlessness.

As a kid, I was never an athletic girl. Always the last one picked in gym class. I didn't like playing in any sports, or anything physical. But, I did love walking for hours at the forest preserve, and was always there when the weather was good! HOURS, not minutes, of walking the trails. I would say hiking, but not quite.

So, I had COPD. Stage 3 at that point. But, what does it all mean? The woman who first diagnosed me accurately, told me something scary. 

"Getting sick just one time, might be your last." 

She was wonderful, honest, and so caring. I took her words to heart.

I joined support groups on Facebook. And,  learned as much as I could about my newly diagnosed disease by googling reputable sites. There is so much to learn! So many different experiences. So much misinformation.

I will not post specific online groups, they are out there. You just have to find them, join them, and decided which ones you want to take part in.

Today, I present to you some helpful links to help you learn more about COPD. These are traditional sites on Facebook, and included are a few transplant and alternative treatment sites. ALL of these have wonderful, caring people to talk with. They will guide you and encourage you every step of the way.

My personal group is here: HOPE for COPD on Facebook. Small, but growing, with some very experienced members.  

The groups that helped me the most! I thank you all so very much!


COPD Alternative's NZ

COPD Navigator

ORGAN Transplant Initiative (OTI)

Lung Transplantation: Taking Flight with New Life Support Group

The Transplant Community Outreach

Michael's Second Wind Transplant Journey

Post a Comment

Popular posts from this blog

What is a Spoonie?

WHAT IS A SPOONIE???I used to look at people so differently. 

Especially, the people parked in the handicap parking spots. I didn't really see them.... Never really thought to much about them. When I did think of them, it was to help them load their van with the groceries they bought, or let them know the door in back was still open. But a part of me, was jealous that they got special treatment. Now... I look at them, HARD. That is now my special parking place! Then I look at myself... 

I don't look sick. 
Sure, I have gained weight due to my illness. But, there is nothing on the outside that screams I need this parking place. I have no wheelchair, no crutches, no service dog, I have all of my limbs. Now, I just look like I am too lazy to walk any further. 

I know. Some of you may know. We have a secret. 
Within our able looking bodies, hides a serious disability. One that takes our breath away, limits the amount of physical activity we can handle, one that is progressing a little …

COPD at 40

Hi everyone, let me start by introducing myself.

My name is Justine Peach. I am a 40 year old woman with a beautiful 16 year old daughter and I live in Melbourne Australia.

I used to have a wonderful job that I loved doing. I worked as a nursery hand in a wholesale plant nursery. I moved between two different areas every six months. For the first six months I would be doing all areas of the work place. I would transplant baby plants into trays on a conveyor belt or moving trays of plants to their designated area to grow. Once ready we would be moving the trays from the ground to a trailer attached to a buggy and put them down ready to pick orders. Staking tomato plants, or watering the entire stock. Sweltering on hot days in greenhouses. There were many different areas and depending on staff and stock as to what our job for the day would be. The other six months I would spend at the main nursery department as a dispatch worker. Getting plants ready to load on trucks and be del…

Am I Unworthy Of Love Because I Have COPD?